Welcome to Hashimoto’s Central!
So glad you’ve found this site! If you’re here, it means you’re looking for resources, information or a community connected to Hashimoto’s Thyroiditis. This is a brand new site, aimed at corralling all the various sources of information and assistance that are out there. I appreciate your patience while I get things up and running.
A little about me: I was officially diagnosed with Hashimoto’s in 1998 at the ripe old age of 42. At that time, I had never heard of it and had no idea what it was. My diagnosis happened as a result of visiting the doctor after being unable to shake off a cold. The doctor prescribed Synthroid and explained that all I would have to do is take this little white pill every day for the rest of my life and I would be fine. Um….wrong.
Actually, I was ok for a while….at least I thought I was. About 5 years after that initial diagnosis, things started to gradually go downhill. I was getting sick more often, I was constantly tired and having more and more trouble concentrating. Now, I had spent most of my life as a professional flutist and I can tell you that not being able to concentrate is a job-killer. You cannot go to gigs and make mistakes and expect to continue to get work. So, I was desperate to find a way to feel better. Unfortunately, no doctor I went to had a plan that worked. Since then, I have walked away from numerous practitioners, most of whom were either clueless or not interested in anything I had to say about my own body and what I thought might work (I do have wonderful practitioners now, thank goodness).
During this time, I was also having major issues with the muscles in my neck and shoulders – mainly knots and spasms which produced a lot of pain. I thought this was a separate issue connected to my many years of flute playing, but I was to find out WAY down the road that this, too, was a part of my autoimmune condition.
I gave up playing my flute in 2008, except for a very small amount of instrument testing that I did for a company in 2009-10. This was a total loss of identity for me and I still grieve this loss from time to time. I have to imagine that some of you out there have had to walk away from jobs as a result of this condition, so believe me when I say that I totally get the emotions that go along with that. I will be writing a separate blog post on this aspect of living with this condition soon.
I have continued to struggle with muscle issues in the years since and recently gave up another job because of this problem. Stress is a MAJOR trigger for Hashi’s symptoms, so anything you can do to reduce this will help you. I will also be writing more about that very soon.
I’m sure you’re noticing that I am not claiming to be “cured” or even in “remission”, because I’m not. In fact, one reason for starting this blog was to put information out there from a person who is still struggling and looking for ways to feel better. I want this site to be the foundation of a community where we can support each other and share any resources that might be out there. I will be setting up an email list and looking for a way to possibly start an online support group, so stay tuned!
I’m really looking forward to meeting all of you out there and learning from you. Please check back soon so that we can get this community growing.
All the Best,
Vanessa Gunter, D.M.A., M.A.
Disclaimer: As you may have noticed, this is a blog and, as such, contains lots of changing content in the form of posts, comments and discussions. This blog is a representation of my personal views and opinions and not those of any associations or organizations to which I may belong or with which I may volunteer. The contents of these pages are informational only and must not be construed as medical advice, opinion, diagnosis or treatment. The information provided here should not be used for diagnosing or treating a medical problem and should not be viewed as a substitute for professional care. If you feel or suspect that you have a medical problem, you should consult an appropriate health care provider.